The Boston Home Welcomes MS Neurology Fellows to National 
Conference on Caring for Patients with Advanced Multiple Sclerosis Conference Brings Learning to Where Care is Delivered: A Nursing Home


Greg Turner, Ball Consulting Group, LLC
On behalf of The Boston Home
Phone: 617-243-9950
The Boston Home Welcomes MS Neurology Fellows to National 
Conference on Caring for Patients with Advanced Multiple Sclerosis
Conference Brings Learning to Where Care is Delivered: A Nursing Home

BOSTON, Mass. (Aug. 26, 2016) — The Boston Home will bring together leading academic researchers, clinicians and neurology fellows to explore the latest innovations in medical research and clinical practice for patients with advanced multiple sclerosis (MS) during a national educational conference on Aug. 29-30, 2016. Fellows will convene at The Boston Home on the second day of the conference to learn directly from caregivers, patients and family members.

The two-day conference, co-sponsored by the Boston Home and the National Multiple Sclerosis Society (NMSS), will provide a talented group of fellows who are emerging in the neurology profession with a deeper understanding of this patient population.

“What really separates this clinical conference from so many others is that it melds the latest in clinical science with the practical application of care, by bringing fellows on site to our facility and creating opportunities for interaction with MS patients,” said Marva Serotkin, Chief Executive Officer of The Boston Home. “The conference is an opportunity to open young neurologists’ eyes to the particular patient population that we serve and to learn from those patients.”

Sessions will be led by key staff of The Boston Home, researchers from NMSS, and faculty from Johns Hopkins University, among others. Topics include cognition and mood, primary care treatment issues, spasticity management, and the impact of advanced MS on the family.

The conference is part of The Boston Home’s mission to advance standards of care for adults with progressive neurological diseases, primarily advanced MS. The conference begins at the Hilton Boston Logan Airport Hotel and shifts on the second day to The Boston Home, the 135-year-old nursing facility in Dorchester known not only for its residential services but its specialized clinical care.

Serotkin will welcome conference attendees to The Boston Home and lead a tour of the 96-bed nursing care facility, which also provides care for individuals living in the community who have MS, providing the visiting fellows with a rare and valuable view of patients with advanced MS in a clinical setting. Dr. Steven Carr, The Boston Home’s Medical Director, will lead a panel discussion with other staff and review of case studies of primary care treatment issues in advanced stages of the disease.

Details for the full agenda for the two-day conference are below.
About The Boston Home
Always an innovator, The Boston Home provides specialized clinical care and residential services for adults with progressive neurological diseases, primarily advanced multiple sclerosis. The Boston Home has extended its mission to serve others living in the community with similar conditions, with services including the day wellness and socialization program B.Fit!, the Wheelchair Enhancement Center, the Outpatient Seating Clinic, and rehab services. The Boston Home offers a test bed for assistive technology development in collaboration with faculty, research scientists and students from area universities as well as offering student internship opportunities.

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Caring for the Patient with Advanced Multiple Sclerosis
A Program for MS Clinical FellowsAgenda
Monday, August 29, 2016 – Hilton Boston Logan Airport Hotel

1:00-1:30 pm Registration, Welcome and IntroductionsDebra Frankel, MS OTR – Vice President, Health Care Access Initiatives, National Multiple Sclerosis Society

1:30 – 2:30 pm Role of the Neurologist in Advanced MS
Thomas P. Leist, MD – Director, Comprehensive Multiple Sclerosis Program, Thomas Jefferson University Hospital

2:30 – 3:30 pm Addressing Cognition and Mood in Advanced MS
Rosalind Kalb, PhD – Vice President, Healthcare Information & Resources, National Multiple Sclerosis Society

3:30 – 3:45 pm Break3:45 – 4:45 pm The Impact of Advanced MS on the Family: Family Panel Discussion
Moderator: Lucille Haratsis, LCSW, M.Ed – Director of the Wellness & Spirituality Program, Director of Admissions, The Boston Home

4:45 – 5:45 pm Current Research Directions in Progressive MS
Karen Lee, PhD – Vice President, Research, Multiple Sclerosis Society of Canada

Tuesday, August 30, 2016 – The Boston Home
8:00 – 8:10 am Opening Remarks
Kathleen Costello, MS, ANP-BC, MSCN – Vice President, Access to Care, National Multiple Sclerosis Society

8:10 – 8:30 am Welcome and Introduction to The Boston Home
Marva Serotkin, MPH – President and CEO, The Boston Home

8:30 – 9:30 am Primary Care Treatment Issues in Advanced Stages of MS: Case Studies and Panel Discussion
Steven E. Carr, MD – Medical Director, The Boston Home
Cindy Walsh, RN, BSN, MSCN – Director of Clinical Services, The Boston Home
Faith Saftler Savage, PT, ATP – Seating Specialist/Consultant, The Boston Home

9:30 – 9:45 am Break

9:45 – 10:45 am Spasticity Management in Advanced Multiple Sclerosis
Stephen F. Koelbel, MD – Medical Director, Spasticity Management Program, Braintree Rehabilitation Hospital and The Boston Home Consultant

10:45 – 11:45 am Sleep Issues and MS
Abbey Hughes, PhD – Assistant Professor, Johns Hopkins University School of Medicine, Department of Physical Medicine & Rehabilitation

11:45 am – 12:15 pm Tour of The Boston Home

12:15 pm – 1:00 pm Lunch & Group Photo

1:00 pm – 2:00 pm Urologic Management of Symptoms Associated with MS
Andrew M. Shapiro, MD, FACS – Director of the Center for Continence and Pelvic Floor Dysfunction of Chesapeake Urology, Baltimore, Md.

2:00 pm – 2:30 pm Demonstration on Nutrition: Feeding and Swallowing Considerations in Advanced MS
Alex Burnham, MS, CCC-SLP – Speech-Language Therapist, Rehabilitation Program Manager, The Boston Home

2:30 pm – 2:45 pm Break

2:45 pm – 3:30 pm Functional Implementation of Assistive Technology for People with Complex Communication Needs and Modifying Adapting Equipment for People with Significant Physical Limitations
Alex Burnham, MS, CCC-SLP – Speech-Language Therapist Rehabilitation Program Manager, The Boston Home
Don Fredette, BSW – Adaptive Technology Specialist and Director of the Wheelchair Enhancement Center at The Boston Home